Vesna Aleksovska
International Gaucher Alliance, Macedonia
Biography
Vesna Aleksovska has founded the Association of citizens for rare diseases “LIFE WITH CHALLENGES”-Bitola in 2009. She is a Gaucher patient and patient advocate for rare disease patient in R. Macedonia. She is also a co-founder and former President of the National Alliance for Rare Diseases of R. Macedonia from 2014. She is now in the Board of NARDM and also in the Board of the Alliance of Patient Organizations of Macedonia. In 2013, she became a Member of the DITA (Drug Information, Transparency and Access) Task Force EURORDIS (European Organization for Rare Diseases) and a Vice Chair and Director in the Board of Directors of the International Gaucher Alliance since 2014. She is also a EUPATI (European Patients Academy on Therapeutic Innovation) Fellow, Trainer and EUPATI Ambassador for Macedonia.
Abstract
Abstract : Humanitarian aid in the frames of International Gaucher Alliance Vesna Aleksovska