11th World Congress on

Rare Diseases and Orphan Drugs

Berlin, Germany

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OCM for Rare Diseases Congress Series Conferences

Organizing Committee - Rare Diseases 2016

OCM Member

Daniel Cohen

Chairman
Pharnext
France

Biography Research Interest

OCM Member

Serge BRAUN

Scientific Director
AFMTelethon
France

Biography Research Interest

OCM Member

Stephen P. Arneric

Executive Director
Critical Path Institute
USA

Biography Research Interest

OCM Member

Stephen B. Shrewsbury

Executive VP, Development & CMO
Fortuna Fix
USA

Biography Research Interest

OCM Member

Amrik Sahota

Professor
Rutgers University
USA

Biography Research Interest

OCM Member

Pat Furlong

Founding President and Chief Executive Officer
Parent Project Muscular Dystrophy
USA

Biography Research Interest

OCM Member

Annemieke Aartsma-Rus

Professor
Leiden University Medical Center
The Netherlands

Biography Research Interest

Organizing Committee - Rare Diseases 2017

OCM Member

Romina Ortiz


Rare Genomics Institute
USA

Biography Research Interest

OCM Member

Harsha Rajasimha


Organization for Rare Diseases India
USA

Biography Research Interest

OCM Member

Amrik Sahota


Rutgers University
USA

Biography Research Interest

OCM Member

Jacques Tremblay


Laval University
Canada

Biography Research Interest

Organizing Committee - Rare Diseases Congress 2017

OCM Member

Nadia Annitia Ameen


Yale University School of Medicine
USA

Biography Research Interest

OCM Member

Abdulaziz Aldawood


King Saud Bin Abdulaziz University
Saudi Arabia

Biography Research Interest

OCM Member

Weida Tong


Division of Bioinformatics and Biostatistics, FDA
USA

Biography Research Interest

OCM Member

Joseph Ndung u


FIND’s Neglected Tropical Diseases
Switzerland

Biography Research Interest

Organizing Committee - Rare Diseases Congress-2018

OCM Member

Tiziana Greggi

Head
Rizzoli Orthopaedic Institute
Italy

Biography Research Interest

OCM Member

Laxminarayan Bhat

President & CEO
Reviva Pharmaceuticals
USA

Biography Research Interest

OCM Member

Dr. med. Bernhard R. Ruf

Head
St. Georg Hospital
Germany

Biography Research Interest

OCM Member

Stef Stienstra

Dutch Armed Forces
Royal Dutch Navy
The Netherlands

Biography Research Interest

OCM Member

Reza Nassiri

Assistant Dean
Michigan State University
USA

Biography Research Interest

Organizing Committee - Rare Diseases 2018

OCM Member

Alba Ancochea

CEO
Spanish Federation of Rare Diseases and its Foundation
Spain

Biography Research Interest

OCM Member

Alastair Kent


Genetic Alliance UK
UK

Biography Research Interest

OCM Member

Don Van Dyke


Cloud Pharmaceuticals
USA

Biography Research Interest

OCM Member

Michael S. Wolfe


University of Kansas
USA

Biography Research Interest

OCM Member

Krupa Torne


Surya Children's Hospital
India

Biography Research Interest

Organizing Committee - World Rare Diseases 2018

OCM Member

Masoabi Sefojane

Chair
South African Haemophilia Foundation Youth Council
South Africa

Biography Research Interest

OCM Member

Abdul Matin

Associate Professor
Majmaah University
Saudi Arabia

Biography Research Interest

OCM Member

Samer Ellahham, MD, CPHQ, EFQM, FACMQ, FACP, FACC, FAHA, FCCP

Regional Chair, Middle East
Patient Safety Movement Foundation
United Arab Emirates

Biography Research Interest

OCM Member

Nadia Bodkin

Senior Executive Vice President
Rare Advocacy Movement
Greater New York City Area

Biography Research Interest

OCM Member

Stef Stienstra

Professor
Dutch Armed Forces / Royal Dutch Navy
Netherlands

Biography Research Interest

OCM Member

Scott Schliebner

Senior Vice President
Center for Rare Disease, Precision Medicine, and Advanced Therapeutics
USA

Biography Research Interest

OCM Member

Hafiz Muhammad Mazhar Asjad

Associate Professor
Forman Christian College University
Pakistan

Biography Research Interest

OCM Member

Mohammed Zahran

Public Health Specialist
Ministry of Health & Prevention
United Arab Emirates

Biography Research Interest

Organizing Committee - Rare Diseases Meet 2019

OCM Member

Mohamed Abozeid

Medical Oncologist
Suez Canal University Hospital
Egypt

Biography Research Interest

OCM Member

Dr. Rafik Abdulal

Consultant Thoracic&Breast Surgeon
Latakia National Hospital(L.N.H)
Syria

Biography Research Interest

OCM Member

Jeff Leider

President
Let Them Be Little X2 Foundation S.G.E
New Jersey

Biography Research Interest

OCM Member

Dr Shrutti Dhar

Country Brand Lead
Rare Diseases India
India

Biography Research Interest

OCM Member

Dr.Mojtaba Mafi

Medical Doctor/ Physician
Tehran university
Iran

Biography Research Interest

OCM Member

Leila Macedo

Founder member of the International Federation of Biosafety Associations
Ministry of Health
Brazil

Biography Research Interest

OCM Member

DR. NEUSA O.V.T LOPES

President of the Multi Drug Resistant Tuberculosis
Ministry of Health, East Timor
Timor

Biography Research Interest

OCM Member

Qais Abu Ali

Medical director
Ultragenyx pharmaceutical
USA

Biography Research Interest

OCM Member

Samer Ellaham

Chief Quality Officer
Sheikh Khalifa Medical City
UAE

Biography Research Interest

OCM Member

Mohamad Miqdady

American Board certified in Pediatric Gastroenterology, Hepatology and Nutrition
Sheikh Khalifa Medical City
Abu Dhabi, UAE

Biography Research Interest

OCM Member

Yuvuz Selim SILAY

Chairman ICG
Istanbul Consulting Group
Turkey

Biography Research Interest

OCM Member

Timothy Low

Head of Medical Affairs, Asia Pacific, Shire
Board Director, Farrer Park Hospital
Singapore

Biography Research Interest

OCM Member

Stef Stienstra

Dutch Armed Forces
Royal Dutch Navy
The Netherlands

Biography Research Interest

OCM Member

DR SAMRAT A SHAH

CONSULTANT PHYSICIAN
MEDIHEAL GROUP OF HOSPITAL
KENYA

Biography Research Interest

OCM Member

Bryan Gutierrez

DHA Pharmacist
Al Zahra Private Hospital
Dubai

Biography Research Interest