OCM for Rare Diseases Congress Series Conferences
Organizing Committee - Rare Diseases 2016

Pat Furlong
Founding President and Chief Executive Officer
Parent Project Muscular Dystrophy
USA

Annemieke Aartsma-Rus
Professor
Leiden University Medical Center
The Netherlands
Organizing Committee - Rare Diseases 2017
Organizing Committee - Rare Diseases Congress 2017
Organizing Committee - Rare Diseases Congress-2018
Organizing Committee - Rare Diseases 2018

Alba Ancochea
CEO
Spanish Federation of Rare Diseases and its Foundation
Spain
Organizing Committee - World Rare Diseases 2018

Masoabi Sefojane
Chair
South African Haemophilia Foundation Youth Council
South Africa

Samer Ellahham, MD, CPHQ, EFQM, FACMQ, FACP, FACC, FAHA, FCCP
Regional Chair, Middle East
Patient Safety Movement Foundation
United Arab Emirates

Nadia Bodkin
Senior Executive Vice President
Rare Advocacy Movement
Greater New York City Area

Stef Stienstra
Professor
Dutch Armed Forces / Royal Dutch Navy
Netherlands

Scott Schliebner
Senior Vice President
Center for Rare Disease, Precision Medicine, and Advanced Therapeutics
USA

Hafiz Muhammad Mazhar Asjad
Associate Professor
Forman Christian College University
Pakistan

Mohammed Zahran
Public Health Specialist
Ministry of Health & Prevention
United Arab Emirates
Organizing Committee - Rare Diseases Meet 2019

Dr. Rafik Abdulal
Consultant Thoracic&Breast Surgeon
Latakia National Hospital(L.N.H)
Syria

Leila Macedo
Founder member of the International Federation of Biosafety Associations
Ministry of Health
Brazil

DR. NEUSA O.V.T LOPES
President of the Multi Drug Resistant Tuberculosis
Ministry of Health, East Timor
Timor

Mohamad Miqdady
American Board certified in Pediatric Gastroenterology, Hepatology and Nutrition
Sheikh Khalifa Medical City
Abu Dhabi, UAE

Timothy Low
Head of Medical Affairs, Asia Pacific, Shire
Board Director, Farrer Park Hospital
Singapore