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Previous Speakers

Danilo A. Tagle

Danilo A. Tagle

National Institutes of Health USA

Wei Zheng

Wei Zheng

National Institutes of Health USA

Leena Bhattacharya Mithal

Leena Bhattacharya Mithal

Northwestern University USA

Thomas Licker

Thomas Licker

Infection Control Technologies USA

Amrita Dosanjh

Amrita Dosanjh

Rady Children’s Hospital,Scripps Hospital USA

Kartikeya Makker

Kartikeya Makker

University of Florida College of Medicine Jacksonville USA

Francis J Castellino

Francis J Castellino

University of Notre Dame USA

Marisa Egan

Marisa Egan

Saint Joseph’s University USA

Rare Diseases Congress 2020

About Rare Diseases Congress 2020

Rare Diseases Congress Organizing committee is happy  to  invite all the participants to  attend  “10th world congress  on Rare diseases and Orphan drugs” which is a webinars scheduled to be held during July 22, 2020. webinars include prompt key-note presentations, special sessions, workshops, symposiums, oral talks,  poster presentation  and  Exhibitions in the fields of Rare diseases and Orphan drugs.The Conference highlights the theme "A Novel Advancements in the Research and Treatement of Rare Diseases".

A rare disease is a health condition that affects a small number of people compared with other prevalent diseases in the general population.  They are characterized by a wide diversity of disorders and symptoms that differs not only from disease to disease but also from individual to individual patient suffering from the same disease. About 80% of these disorders have predictable genetic origins while the others are the result of infections, allergies, neurological related and environmental causes. A medicinal product developed for the treatment of a Rare Disease is an Orphan Drug. Under regular market environments the pharmaceutical industry has little attention in evolving and marketing products of Orphan Drugs proposed for only a small number of patients.

Scope of the conference:

The majority of around 800 million people with other Rare Diseases, including 100,000 children born with thalassemia annually receive no treatment. With the help of this conference and the recent advancements and research done on this rare diseases and orphan drugs will reduces the death counts   throughout the world.

Target Audience:

  • Infectious Diseases Specialist
  • Scientists
  • Researches
  • Students
  • Medical devices manufacturing companies
  • Health care professionals
  • Pharmaceutical companies
  • Neurologists
  • Virologists
  • Pathologists
  • Orphan drug companies
  • Patient groups

Rare Diseases 2020 webinar is intended to honor prestigious award for talented Young researchers, Scientists, Young Investigators, Post-Graduate students, Post-doctoral fellows, Trainees, Junior faculty in recognition of their outstanding contribution towards the conference theme. The Young Scientist Awards make every effort in providing a strong professional development opportunity for early career academicians by meeting experts to exchange and share their experiences on all aspects of Rare Diseases 2020 webinar

Young Research’s Awards at Rare Diseases 2020 for the Nomination:

Young Researcher Forum - Outstanding Masters/Ph.D./Post Doctorate thesis work Presentation and only 25 presentations acceptable at the Rare diseases 2020 online meetings

YRF Registration Benefits:

  • Young Scientist Award recongination certificate and memento to the winners
  • Rare diseases 2020 online conferences provides best Platform for your research through oral presentations.
  • Learn about career improvement with all the latest technologies by networking.
  • Provide an opportunity for research interaction and established senior investigators across the globe in the field Rare diseases 2020 Virtual conferences
  • It’s a great privilege for young researchers to learn about the research areas for expanding their research knowledge.

YRF Registration Deadline

  • Till December 30 – $399
  • Till January 30 – $499
  • Till February 28 – $599

Why to attend:

Rare Diseases 2020 webinar is giving a worldwide stage to analysts that afford new insights into the concealed rare diseases.  These diseases are responsible for rising healthcare costs, lost productivity, and long-term disability. This conference will feature a global audience of scientific leaders, academia and health care professionals, and Orphan Drugs experts who are going to discuss today’s emerging treatments and diagnostics. By bringing together the rare diseases community, presenting the latest developments and identifying unmet treatment needs.  It is designed to provide an educational forum that stimulates clinical, research, government and patient communities to create a coordinated and comprehensive approach for advancing the implementation of research, clinical care, care delivery coordination and other public health interventions critical to enhan​ced outcomes in Rare Diseases.

Sessions / Tracks

Track 1: Rare Diseases in Neurology

Neurological disorders are the diseases associated with the spine, brain and the nerves that connect them. It affects the body nervous system. Reflex Sympathetic Dystrophy Syndrome, Aicardi-Goutieres syndrome, Acarida syndrome are few rare neurological disorders to specify. The central nervous system affected by Rare Neurological Disorders usually develops in infancy and is inherited in an autosomal recessive manner. There are various kinds of symptoms which are categorized in three main stages that provide a general basis for diagnosing individuals with LS. The symptoms of the stage I are characterised as stunted growth, vomiting, and diarrhoea.  Symptoms exhibited in stage II are example such as optic atrophy, uncoordinated movement, dystonia, hypotonia, and peripheral neuropathy. The symptoms of stage III are dysarthria, acute muscle and dysphagia, atrophy is common, with death being the outcome. It is necessary to study the physiological defects of brain and muscle structures in LS for proper diagnosis and treatment.

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 WebinarThe European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 WebinarRare Drug Development Symposium June 11-20, 2020, WebinarRare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD)European Academy of NeurologyEuropean Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of Dermatologist;  European Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare DisordersRare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases OncologyNortheast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease OrganisationsInternational Rare Diseases Research Consortium; Rare Diseases Society SingaporeOrganization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons.

Track 2: Rare Mental and Behavioural Disorders

Abnormality is also called as dysfunctional behaviour which refers to the behavioural characteristic assigned to those with conditions regarded as rare or dysfunctional. Behaviour is considered to be abnormal when it is atypical or out of the normal or usual, it consists of unpleasant behaviour, and results in deterioration in the individual's functioning. Abnormality is one, which is considered as different from specific ethical social and cultural expectations. These expectations are broadly dependent on age, gender, traditional and societal categorizations. The definition of abnormal behaviour is an often debated issue in abnormal psychology because of these subjective variables.

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 WebinarThe European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 WebinarRare Drug Development Symposium June 11-20, 2020, WebinarRare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD)European Academy of NeurologyEuropean Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of DermatologistEuropean Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare DisordersRare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases OncologyNortheast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease OrganisationsInternational Rare Diseases Research Consortium; Rare Diseases Society SingaporeOrganization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 3: Rare Pediatrics Diseases

The majority of rare diseases affect children, most of whom have an underlying genetic cause for their condition. However, making a molecular diagnosis with current technologies and knowledge is often still a challenge. Pediatric genomics is rapidly evolving field but it is not well developed, that tackles this problem by incorporating next-generation sequencing technologies, especially whole-exome sequencing and whole-genome sequencing, into research and clinical workflows. This difficult multidisciplinary approach, combined with the ascending availability of population genetic data variation, has already resulted in an increased discovery rate of causative genes and in improved diagnosis of rare pediatric disease. Substantially, for affected individual family members, a good and thorough understanding of the genetic basis of rare disease translates to more perfect prognosis, management, surveillance and genetic advice; stimulates research into new therapies; and enables provision of better support.

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 WebinarThe European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 WebinarRare Drug Development Symposium June 11-20, 2020, WebinarRare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD)European Academy of NeurologyEuropean Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of DermatologistEuropean Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare DisordersRare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases OncologyNortheast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease OrganisationsInternational Rare Diseases Research Consortium; Rare Diseases Society SingaporeOrganization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons.

Track 4: Immunological Rare Diseases

The immune system is delegated to defend the body from attacks from outside or inside. Many diseases can affect immune system reducing its ability to defend self or inducing an abnormal response against external or internal antigens. Rare diseases affecting immune system present some issue in common with other rare diseases and some peculiarities due to the huge variability in the disease's expression. However, a correct estimation of the epidemiology of rare disorders is necessary for evaluating the prognosis and the responses to new therapies, for planning proper public health services, and finally to establish fair and sustainable prices for innovative medicines. The immune system is delegated to defend the body from attacks from outside or inside. Many diseases can affect immune system reducing its ability to defend self or inducing an abnormal response against external or internal antigens. 

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 WebinarThe European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 WebinarRare Drug Development Symposium June 11-20, 2020, WebinarRare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD)European Academy of NeurologyEuropean Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of DermatologistEuropean Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare DisordersRare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases OncologyNortheast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease OrganisationsInternational Rare Diseases Research Consortium; Rare Diseases Society SingaporeOrganization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 5: Rare Diseases in Nephrology

Many rare diseases affect the kidneys and the urinary system, some limited to the urinary system itself (e.g., membranous nephropathy), and some part of a condition (e.g., AL port syndrome) that causes additional symptoms in other organ systems. With varying degrees of severity, these diseases can affect different parts of the urinary system (kidney glomerulus, kidney tubules, urinary tract, etc.) causing numerous symptoms. Several of these diseases occur in the context of inflammation and autoimmune disease (e.g., Good pasture syndrome). Many rare types of vasculitis can also cause major kidney problems (e.g., Henoch-Schönlein purpura nephritis). Disorders of kidney development, kidney metabolism, or substance transport within the kidney also exist. Some are directly heritable diseases caused by genetic defects (e.g., cystinuria). Rare diseases can cause acute kidney damage (which may be repairable), but more often result in chronic kidney disease.

Relevant Conferences:Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 WebinarThe European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 WebinarRare Drug Development Symposium June 11-20, 2020, WebinarRare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD)European Academy of NeurologyEuropean Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of DermatologistEuropean Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare DisordersRare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases OncologyNortheast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease OrganisationsInternational Rare Diseases Research Consortium; Rare Diseases Society SingaporeOrganization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

 Track 6: Rare Dermatological Disorders 

Skin disorders differ significantly in indications and brutality. Rare skin diseases are mostly genetic. Genodermatoses are genetic skin disorders with cutaneous expression.  The Genodermatoses & Rare Skin Diseases therapeutic centres targeted mainly genodermatoses with a high effect on quality of life of patients and of their families and leading to a huge social handicap. There are many rare skin diseases like Atopic dermatitis(categorized by chronic inflammation of the skin), Epidermolysis Bullosa (inherited disorders in which the skin and mucous crusts are very delicate that the lightest touch can cause very painful), Icthyosis (dry, thickened, scaling skin)..                                 

Relevant Conferences:Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 WebinarThe European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 WebinarRare Drug Development Symposium June 11-20, 2020, WebinarRare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD)European Academy of NeurologyEuropean Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of DermatologistEuropean Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare DisordersRare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases OncologyNortheast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease OrganisationsInternational Rare Diseases Research Consortium; Rare Diseases Society SingaporeOrganization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 7: Rare Oncology Disorder

The many different types of rare oncological diseases include tumors of the body and hematological disorders of the blood. Although individually these malignancies are rare, as a group, they represent a significant majority of people with cancer.Certain characteristics of these malignancies differentiate them from more common types of cancer. Often, the cancer begins in a type of cell that only rarely becomes cancerous. This can happen in organs that are otherwise common sites of cancer growth. For example, although breast cancer is not a rare disease, angiosarcoma of the breast, which arises in the inner lining of blood vessels, is a rare cancer..            

Relevant Conferences:Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 WebinarThe European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 WebinarRare Drug Development Symposium June 11-20, 2020, WebinarRare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD)European Academy of NeurologyEuropean Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of DermatologistEuropean Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare DisordersRare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases OncologyNortheast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease OrganisationsInternational Rare Diseases Research Consortium; Rare Diseases Society SingaporeOrganization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 8: Rare Diseases of Lymphatic System

These diseases occur very rarely, consisting of fluid-filled channels they are non-malignant masses or spaces thought to be caused by the abnormal development of the lymphatic system. These formations are usually detectable at birth or after two years of age. Lymphatic malformations can affect any part of the body (except the brain), but they most commonly affect the head and neck. When recognized at birth that is congenital, lymphatic malformations tend to be soft, spongy, non-tender masses. The most common symptoms and lymphatic malformations severity differs depending upon the size and specific location of the malformation. Some lymphatic malformations can be massive or huge Lymphatic malformations can potentially cause functional impairment of nearby structures or organs and disfigurement of affected areas Irrespective of size.

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 WebinarThe European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 WebinarRare Drug Development Symposium June 11-20, 2020, WebinarRare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD)European Academy of NeurologyEuropean Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of DermatologistEuropean Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare DisordersRare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases OncologyNortheast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease OrganisationsInternational Rare Diseases Research Consortium; Rare Diseases Society SingaporeOrganization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

 Track 9: Rare Nutritional and Metabolic Diseases

Metabolism is the chemical process which our body uses to transform the food we eat into the form energy or fuel that keeps us alive and energetic too. When the metabolism processes fails a metabolic disorder causes and results in the body to have either too high or too little of the essential materials needed to stay healthy. Our body is very sensitive to mistakes or errors in metabolism. The body must have amino acids and many types of proteins to perform all its metabolic functions.  Calcium, potassium, and sodium ions are utilized by our brain to generate electrical impulses and to send signals, and also lipids and fatty acids to maintain a healthy nervous system.                                 

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 WebinarThe European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 WebinarRare Drug Development Symposium June 11-20, 2020, WebinarRare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD)European Academy of NeurologyEuropean Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of DermatologistEuropean Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare DisordersRare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases OncologyNortheast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease OrganisationsInternational Rare Diseases Research Consortium; Rare Diseases Society SingaporeOrganization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 10: Rare Gynaecological and Obstetrical Diseases

Gestational Diseases (GTD) may be defined as bunch of rare diseases that develop within the womb throughout an abnormal physiological condition. It happens once when abnormal cells or tumours grow inside the tissues that are square measure shaped following conception that may unremarkably surround the embryo and transform the placenta. Redness is caused by Acute venereal disease which might result in the Fitz-Hugh-Curtis syndrome (perihepatitis that causes higher right quadrant pain). Infection may become chronic, which are characterised by intermittent exacerbations and remissions

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 WebinarThe European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 WebinarRare Drug Development Symposium June 11-20, 2020, WebinarRare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD)European Academy of NeurologyEuropean Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of DermatologistEuropean Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System; Orphanet; European Union Committee of Experts on Rare Diseases;

USA: Rare Diseases InternationalEmirates Rare Diseases AssociationThe Every Life Foundation for Rare DiseasesThe Ryan Foundation; Canadian Society for Immunology; National Organization for Rare DisordersRare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases OncologyNortheast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: Rare Pediatric Infectious Disease Society of Thailand; The Asia-Pacific Alliance of Rare Disease OrganisationsInternational Rare Diseases Research Consortium; Rare Diseases Society SingaporeOrganization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 11: Treatment and Advanced Therapies for Rare Diseases

Diagnosis and the treatment of a rare disease become complex because of the circumstances that numerous health care providers may have restricted involvement with the identification of the disease condition with the diagnosis of rare diseases. Additionally, analysis before manifestation onset or diagnosis early stage in the disease can be challenging. Biopharmaceutical experts in the field have utilized new advances and the developing investigative comprehension of many rare diseases to develop and diagnose ground breaking therapies over the last 10 years. In 2015 alone, about half (47%) of novel latest drug approvals were for rare diseases. Disease specific therapies need to be developed for productive results in treatment of Rare Diseases.

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 WebinarThe European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 WebinarRare Drug Development Symposium June 11-20, 2020, WebinarRare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD)European Academy of NeurologyEuropean Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of DermatologistEuropean Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare DisordersRare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases OncologyNortheast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease OrganisationsInternational Rare Diseases Research Consortium; Rare Diseases Society SingaporeOrganization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 12: Orphan Drugs Potentiality

An orphan drug is referred medicinal agent which has been developed to treat a rare medical illness or situation, the condition itself being defined to as a rare disease. Rare disease, also known as an "orphan disease", is any type of disease which affects a small percentage of the population. Majority of rare diseases are genetic, and hence are present throughout the individual's entire life, even if symptoms don’t appear immediately. Many rare diseases appear early in life, and about 30 % of children with rare diseases will die before getting 5 year old. With only a solo diagnosed patient, ribose-5-phosphate isomerase deficiency is presently considered to be the rarest genetic disease. No single cut-offs number has been decided upon for which a disease is considered rare. An illness may be considered rare in one part of the world, or in a group of people, but still be common in another country or group of people. According to a research over 55 million people are estimated to suffer from a rare disease in Europe and in the US, global estimates are between 5000 to 7000 rare diseases and new rare diseases are revealed every week and for many treatments is not available.

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 WebinarThe European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 WebinarRare Drug Development Symposium June 11-20, 2020, WebinarRare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD)European Academy of NeurologyEuropean Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of DermatologistEuropean Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare DisordersRare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases OncologyNortheast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease OrganisationsInternational Rare Diseases Research Consortium; Rare Diseases Society SingaporeOrganization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 13: Rare Diseases in Blood stream

Breakdown in regular process of blood cell growth and development leads to the cell types production in abnormally large quantities or in abnormal form. Some rare blood disorders especially those that are gene-based are easy to identify with a simple test, while others require substantial analyst work to successfully diagnose. Due to the large number of blood conditions common and uncommon, haematologists tend to be skilled investigators because they need to be specialists in differential diagnosis. This leads to blood cancers or other blood disorders. The most common blood cancers include leukemia, lymphomas, and multiple myeloma. There are few common blood disorders also. These include various myeloproliferative neoplasms, histiocytosis, and paroxysmal nocturnal hemoglobinuria.   

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 WebinarThe European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 WebinarRare Drug Development Symposium June 11-20, 2020, WebinarRare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD)European Academy of NeurologyEuropean Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of DermatologistEuropean Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare DisordersRare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases OncologyNortheast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease OrganisationsInternational Rare Diseases Research Consortium; Rare Diseases Society SingaporeOrganization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 14: Rare Diseases of Endocrine System

Even though numerous endocrine system illnesses such as diabetes, thyroid, and osteoporosis are among the utmost common and well known medical conditions, some patients who have been referred to an endocrinologist will require treatment for a rare disease. Numbers of these rare diseases are dangerous and lead to myriad sequelae and secondary diseases. Gland-based hormonal imbalances resulting in developmental abnormalities and related complications are among these diseases, weight regulation issues and physical abnormalities and frequent carcinogenic and non-carcinogenic endocrine-related tumour disorders (e.g., multiple endocrine neoplasia, neuroendocrine cancer adrenocortical carcinoma, papillary thyroid carcinoma, primary thyroid lymphoma). Rare endocrine diseases can potentially impact any organ system, however.

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 WebinarThe European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 WebinarRare Drug Development Symposium June 11-20, 2020, WebinarRare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD)European Academy of NeurologyEuropean Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of DermatologistEuropean Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare DisordersRare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases OncologyNortheast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease OrganisationsInternational Rare Diseases Research Consortium; Rare Diseases Society SingaporeOrganization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 15: Rare Musculoskeletal Diseases

A wide range of rare conditions involve the musculoskeletal system. Some, like Duchenne muscular dystrophy, arise from genetic problems in the muscles themselves, while others involve the nerves (e.g., Charcot-Marie-Tooth disease), motor neurons (e.g., amyotrophic lateral sclerosis [ALS]), or the bones (e.g., osteogenesis imperfecta). Problems in other part of the body—such as mitochondrial disease or a metabolic disease like carnitine deficiency can also lead to major problems with these systems. Many individuals are familiar with some of these conditions. Nonetheless, treatment options remain limited although extensive research may soon change that.

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 WebinarThe European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 WebinarRare Drug Development Symposium June 11-20, 2020, WebinarRare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD)European Academy of NeurologyEuropean Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of DermatologistEuropean Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare DisordersRare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases OncologyNortheast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease OrganisationsInternational Rare Diseases Research Consortium; Rare Diseases Society SingaporeOrganization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 16: Rare Hereditary Diseases

Researchers have made dramatic inroads into the study of polygenic and other complex human diseases, due in large part to knowledge of the human genome sequence, the generation of widespread markers of genetic variation, and the development of new technologies that allow investigators to associate disease phenotypes with genetic loci. Although polygenic diseases are more common than single-gene disorders, studies of monogenic diseases provide an invaluable opportunity to learn about underlying molecular mechanisms, thereby contributing a great deal to our understanding of all forms of genetic disease.

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 WebinarThe European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 WebinarRare Drug Development Symposium June 11-20, 2020, WebinarRare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD)European Academy of NeurologyEuropean Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of DermatologistEuropean Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare DisordersRare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases OncologyNortheast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease OrganisationsInternational Rare Diseases Research Consortium; Rare Diseases Society SingaporeOrganization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 17: Orphan Medicinal Products

Orphan medicinal products are intended for the analysis, prevention or treatment of dangerous or very serious conditions that affect no more than 5 in 10,000 people in the European Union. Patients suffering from rare diseases deserve the same quality of treatment as other patients within the European Union. Given the small numbers of patients affected by rare diseases, the pharmaceutical industry has been unwilling in the past to invest in the research and development of medicinal products to treat them. The EU introduced new legislation in 2000 with the aim of providing incentives for the development of medicines for rare diseases (so-called orphan medicinal products).

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 WebinarThe European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 WebinarRare Drug Development Symposium June 11-20, 2020, WebinarRare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD)European Academy of NeurologyEuropean Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of DermatologistEuropean Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare DisordersRare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases OncologyNortheast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease OrganisationsInternational Rare Diseases Research Consortium; Rare Diseases Society SingaporeOrganization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 18: Economic aspects of Rare Diseases and Orphan Drugs

Economic difficulties related to the prevention, analysis and treatment of Rare Diseases and production of Orphan Drugs are presented compensating particular attention to the costs of financing treatment, including the issue of its repayment, which is an important and difficult to solve economic problem of the health care system. Cumulative pressures on health care financial plan have led to a rising attention in the use of economic evaluation in reimbursement decisions for Orphan Drugs and other health technologies

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 WebinarThe European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 WebinarRare Drug Development Symposium June 11-20, 2020, WebinarRare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD)European Academy of NeurologyEuropean Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of DermatologistEuropean Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare DisordersRare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases OncologyNortheast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease OrganisationsInternational Rare Diseases Research Consortium; Rare Diseases Society SingaporeOrganization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 19: Orphan Drugs strategies and developmental trends

As per the recent researches, the orphan drug market is now opening to display trends seen in traditional pharma markets. The numbers of orphan drug approvals have increased in recent years. Both novel agents and new indications serve as the primary drivers of this recent orphan drug growth. The new business model of orphan drugs could offer a cohesive healthcare resolution that enables pharma companies to develop newer areas of therapeutics, analysis, treatment, monitoring, and patient support. Additionally, the development of orphan drugs is faced with some challenges that are unique to rare diseases. In spite of the challenges, creative Competitive Intelligence (CI) strategies can provide an attentive and improved method for the successful development of orphan drugs.

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 WebinarThe European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 WebinarRare Drug Development Symposium June 11-20, 2020, WebinarRare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD)European Academy of NeurologyEuropean Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of DermatologistEuropean Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare DisordersRare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases OncologyNortheast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease OrganisationsInternational Rare Diseases Research Consortium; Rare Diseases Society SingaporeOrganization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeon.

Market Analysis

Rare Disease Treatment Market size is experience significant growth from 2019 to 2025. Increasing prevalence of rare diseases across the world will stimulate rare disease treatment market growth in the coming years. Rare diseases or orphan diseases are conditions that affect a small percentage of population at any given time. According to the U.S. Food & Drug Administration (FDA), an orphan disease is defined as a disease or condition affecting less than 200,000 people in the country. Orphan Drugs Act under the U.S. legislation allows manufacturer to request FDA to grant an orphan drug status to drugs intended to treat a rare disease or condition.

The Objective of the "Global Rare Disease Drugs Market" report is to depict the trends and upcoming for the Rare Disease Drugs industry over the forecast years. Rare Disease Drugs Market report data has been gathered from industry specialist/experts. Although the market size of the market is studied and predicted from 2019 to 2028 mulling over 2016 as the base year of the market study. Attentiveness for the market has increased in recent decades due to development and improvement in the innovation

Additionally, rising investment in rare diseases treatment categories and introduction of new drugs will boost the market growth in the coming years. For instance, more than 560 drugs are in development for the treatment of rare disease. Therapies in development include treatment for amyotrophic lateral sclerosis, multiple myeloma, cystic fibrosis and enzyme deficiency disorders. Rising government initiatives for spreading awareness regarding rare diseases along with presence of suitable healthcare infrastructure in developed and developing economies will drive the industry growth.

Market Research Growth on Rare Diseases and Orphan Drugs

Nearly there are 7,000 different types of Rare Diseases and disorders it has estimated that 30 million people in the United States, 30 million in Europe and 350 million people over the globe suffer from Rare Diseases. Four by fifth of Rare Diseases are genetic in origin, among them affected individuals 50% of them will be children. The Rare Diseases are distributed in such a way that four fifth of the cases accounted by some 350 Rare Diseases. About only 5% of rare diseases are having approved drug treatment with only 326 new drugs being approved from the FDA and brought in to the market.

In 2018, Orphan Drug sales were of the order of 93 billion. Orphan Drugs represented 35% of the industry’s new drug approvals. The genetic diseases are subdivided by therapeutic area, which was leading the global market in the past will show similar traction in the coming next eight years. This segment is anticipated to be valued at US$ 56,241 by the end of 2025. According to Statistics of MRC, the Global Orphan Drug market is estimated at $145.89 million in 2018 and is expected to reach $265.63 million by 2022 growing at a CAGR of 10.5% from 2018 to 2022.

Major Associations Associated with Rare Diseases Research:

Major Universities Associated with Rare Diseases Research

Major Companies Associated with Rare Diseases and Orphan Drugs

Summary:

Rare Diseases are that affects a small percentage of the population all over the world. An Orphan Disease is Rare Diseases with a lack of a market large enough to gain support and sources for discovering treatments for it, with advances to research in orphan diseases advantageous conditions to creating and selling such treatments. Rare diseases are genetic and are present throughout the entire life of individual suffering, even if symptoms do not immediately appear. Many Rare Diseases seems to appear early in life, and about 30% of children affecting with rare pediatric diseases will die before getting 5 year old. Rare Diseases are generally genetic and so they chronic. It is estimates that at least 80% of them have identified genetic origins. Other Rare Diseases are the result of infections and allergies or it may be due to degenerative and proliferative causes and discovering the well-advanced treatments in Rare Diseases and Orphan Drugs.

Past Conference Report

Rare Diseases Congress- 2019

9th World Congress on Rare diseases and orphan Drugs which is held in the leading global city Berlin, Germany  attracting  country's economic and cultural hub and one of Europe's main financials  and industrial capitals.

Pediatricians, Researchers, physicians, students and other healthcare professionals gathered from all over the world gathered to participate in the Rare Diseases and Orphan drugs 2019, Conference at Berlin, Our Conference covered the novel research in the field of rare Diseases. Rare diseases and Orphan Drugs 2019 conference was organized by Conference series llc ltd.

The goal of Rare Diseases Conference is to provide a platform for the international relationships among the researchers involved in the field of Rare Diseases and Orphan Drugs 2019.

Rare Diseases Conference started with opening ceremony and followed by the Honourable guests, Keynote talk & plenary sessions by renowned speakers. The list includes.

vesna aleksovska,International Gaucher Alliance, Macedonia

Shmuel Prints, NDC Medicine,Israe

Wafaa Ahmed Zahran, Menoufia University, Egypt

Our sincere thanks to the moderator, Chair & Co-Chairs for flawless execution of the conference program. The list as follows:

Stef Stienstra, Dutch Armed Forces, Netherlands

Rare Diseases Conference team would like to extend our gratitude to the poster judge Prof. Prashanthi Rayapati, STEM Researcher, USA  with the huge success of Rare Diseases and Orphan Drug 2019, Conference Series LLC LTD is proud to announce the "10th World Congress on Rare Diseases and Orphan Drugs "  to be held during July 22 -23, 2020 at Barcelona, Spain.


Past Reports  Gallery  

To Collaborate Scientific Professionals around the World

Conference Date September 16-17, 2020

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Keytopics

  • Aarskog Syndrome
  • Achalasia
  • Achondroplasia Imaging
  • Acidemia Isovaleric
  • Acoustic Neuroma
  • Addison's Disease
  • African Iron Overload
  • Alkaptonuria
  • Ankylosing Spondylitis
  • Anorectal Melanoma
  • Canavan Disease
  • Cancer Treatment
  • Challenges In Rare Diseases Treatment
  • Challenges In The Economic Evaluation Of Orphan Drugs
  • Childhood
  • Chordoma
  • Chronic Disease
  • Clinical And Emergency Guidelines
  • Clinical Trials
  • Congenital Adrenal Hyperplasia
  • Data Architechure Of Rare Diseases
  • Diagnostics
  • Diastrophic Dysplasia
  • Disease Specic Groups
  • Donath-Landsteiner Hemolytic Anemia
  • Dravet Syndrome
  • Drug Discovery
  • Fabry Disease
  • Friedreich's Ataxia
  • Gastrointestinal Stromal Tumours
  • Genetic Disorders
  • Genetic Mutations
  • Genomics
  • Goodpasture Syndrome
  • Hypoplastic Left Heart Syndrome
  • Immunesystem
  • Incidence
  • Information System
  • Joubert Syndrome
  • Kasabach-Merritt Syndrome
  • KAT6A Syndrome
  • Kikuchi Disease
  • Krabbe Leukodystrophy
  • Lesch-Nyhan Disease
  • Life -threatening Diseases
  • Lipoprotein Lipase Deficiency
  • Mackenzie Fox-Byrne
  • Marcus Gunn Jaw-winking Syndrome
  • Methemoglobinemia.
  • Mitochondrial Pathology
  • Monoclonal Antibody Products
  • Neglected Disease
  • Neurofibromatosis
  • Organic Academic
  • Orphan Drug Act
  • Orphan Indication
  • Orphan Medicinal Product
  • Orphan Pharmaceutical Product
  • Orphan Status.
  • Periodic Disease
  • Pharmacokinetics And Pharmacodynamics
  • Prevalence
  • Rare Bone Diseases
  • Rare Child Diseases
  • Rare Chromosome Disorders
  • Rare Congential Disorders
  • Rare Disability
  • Rare Diseases Awareness
  • Rare Genetic Diorders In Humans
  • Rare Medicinal Technology
  • Rare Pediatric Disease
  • Re-emerging Infectious Diseases
  • Schnitzler Syndrome.
  • Sepsis
  • Septicaemia
  • Sexually Transmitted Diseases
  • Sexually Transmitted Infections
  • Skin Diseases
  • Surgical Site Infections
  • Thrombocytopenia-Absent Radius Syndrome
  • Treatment For Infectious Diseases
  • Tuberculosis
  • Ultra Orphan Drug
  • Ultra Rare Disease
  • Unidentified
  • Uric Acid
  • Urinary Tract Infections
  • Vaccines And Vaccination
  • Very Rare Disease
  • Viral Infection
  • Zoonosis