Track 1: Rare Diseases in Neurology

Neurological disorders are the diseases associated with the spine, brain and the nerves that connect them. It affects the body nervous system. Reflex Sympathetic Dystrophy Syndrome, Aicardi-Goutieres syndrome, Acarida syndrome are few rare neurological disorders to specify. The central nervous system affected by Rare Neurological Disorders usually develops in infancy and is inherited in an autosomal recessive manner. There are various kinds of symptoms which are categorized in three main stages that provide a general basis for diagnosing individuals with LS. The symptoms of the stage I are characterised as stunted growth, vomiting, and diarrhoea.  Symptoms exhibited in stage II are example such as optic atrophy, uncoordinated movement, dystonia, hypotonia, and peripheral neuropathy. The symptoms of stage III are dysarthria, acute muscle and dysphagia, atrophy is common, with death being the outcome. It is necessary to study the physiological defects of brain and muscle structures in LS for proper diagnosis and treatment.

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7^th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8^th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16^th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12^th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11^th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1^st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 Webinar; The European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 Webinar; Rare Drug Development Symposium June 11-20, 2020, Webinar; Rare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD);  European Academy of Neurology;  European Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of Dermatologist;  European Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare Disorders;  Rare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases Oncology;  Northeast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease Organisations;  International Rare Diseases Research Consortium; Rare Diseases Society Singapore;  Organization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons.

Track 2: Rare Mental and Behavioural Disorders

Abnormality is also called as dysfunctional behaviour which refers to the behavioural characteristic assigned to those with conditions regarded as rare or dysfunctional. Behaviour is considered to be abnormal when it is atypical or out of the normal or usual, it consists of unpleasant behaviour, and results in deterioration in the individual's functioning. Abnormality is one, which is considered as different from specific ethical social and cultural expectations. These expectations are broadly dependent on age, gender, traditional and societal categorizations. The definition of abnormal behaviour is an often debated issue in abnormal psychology because of these subjective variables.

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7^th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8^th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16^th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12^th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11^th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1^st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 Webinar; The European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 Webinar; Rare Drug Development Symposium June 11-20, 2020, Webinar; Rare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD);  European Academy of Neurology;  European Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of Dermatologist;  European Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare Disorders;  Rare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases Oncology;  Northeast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease Organisations;  International Rare Diseases Research Consortium; Rare Diseases Society Singapore;  Organization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 3: Rare Pediatrics Diseases

The majority of rare diseases affect children, most of whom have an underlying genetic cause for their condition. However, making a molecular diagnosis with current technologies and knowledge is often still a challenge. Pediatric genomics is rapidly evolving field but it is not well developed, that tackles this problem by incorporating next-generation sequencing technologies, especially whole-exome sequencing and whole-genome sequencing, into research and clinical workflows. This difficult multidisciplinary approach, combined with the ascending availability of population genetic data variation, has already resulted in an increased discovery rate of causative genes and in improved diagnosis of rare pediatric disease. Substantially, for affected individual family members, a good and thorough understanding of the genetic basis of rare disease translates to more perfect prognosis, management, surveillance and genetic advice; stimulates research into new therapies; and enables provision of better support.

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7^th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8^th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16^th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12^th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11^th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1^st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 Webinar; The European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 Webinar; Rare Drug Development Symposium June 11-20, 2020, Webinar; Rare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD);  European Academy of Neurology;  European Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of Dermatologist;  European Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare Disorders;  Rare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases Oncology;  Northeast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease Organisations;  International Rare Diseases Research Consortium; Rare Diseases Society Singapore;  Organization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons.

Track 4: Immunological Rare Diseases

The immune system is delegated to defend the body from attacks from outside or inside. Many diseases can affect immune system reducing its ability to defend self or inducing an abnormal response against external or internal antigens. Rare diseases affecting immune system present some issue in common with other rare diseases and some peculiarities due to the huge variability in the disease's expression. However, a correct estimation of the epidemiology of rare disorders is necessary for evaluating the prognosis and the responses to new therapies, for planning proper public health services, and finally to establish fair and sustainable prices for innovative medicines. The immune system is delegated to defend the body from attacks from outside or inside. Many diseases can affect immune system reducing its ability to defend self or inducing an abnormal response against external or internal antigens. 

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7^th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8^th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16^th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12^th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11^th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1^st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 Webinar; The European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 Webinar; Rare Drug Development Symposium June 11-20, 2020, Webinar; Rare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD);  European Academy of Neurology;  European Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of Dermatologist;  European Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare Disorders;  Rare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases Oncology;  Northeast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease Organisations;  International Rare Diseases Research Consortium; Rare Diseases Society Singapore;  Organization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 5: Rare Diseases in Nephrology

Many rare diseases affect the kidneys and the urinary system, some limited to the urinary system itself (e.g., membranous nephropathy), and some part of a condition (e.g., AL port syndrome) that causes additional symptoms in other organ systems. With varying degrees of severity, these diseases can affect different parts of the urinary system (kidney glomerulus, kidney tubules, urinary tract, etc.) causing numerous symptoms. Several of these diseases occur in the context of inflammation and autoimmune disease (e.g., Good pasture syndrome). Many rare types of vasculitis can also cause major kidney problems (e.g., Henoch-Schönlein purpura nephritis). Disorders of kidney development, kidney metabolism, or substance transport within the kidney also exist. Some are directly heritable diseases caused by genetic defects (e.g., cystinuria). Rare diseases can cause acute kidney damage (which may be repairable), but more often result in chronic kidney disease.

Relevant Conferences:Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7^th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8^th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16^th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12^th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11^th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1^st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 Webinar; The European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 Webinar; Rare Drug Development Symposium June 11-20, 2020, Webinar; Rare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD);  European Academy of Neurology;  European Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of Dermatologist;  European Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare Disorders;  Rare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases Oncology;  Northeast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease Organisations;  International Rare Diseases Research Consortium; Rare Diseases Society Singapore;  Organization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

 Track 6: Rare Dermatological Disorders 

Skin disorders differ significantly in indications and brutality. Rare skin diseases are mostly genetic. Genodermatoses are genetic skin disorders with cutaneous expression.  The Genodermatoses & Rare Skin Diseases therapeutic centres targeted mainly genodermatoses with a high effect on quality of life of patients and of their families and leading to a huge social handicap. There are many rare skin diseases like Atopic dermatitis(categorized by chronic inflammation of the skin), Epidermolysis Bullosa (inherited disorders in which the skin and mucous crusts are very delicate that the lightest touch can cause very painful), Icthyosis (dry, thickened, scaling skin)..                                 

Relevant Conferences:Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7^th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8^th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16^th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12^th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11^th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1^st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 Webinar; The European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 Webinar; Rare Drug Development Symposium June 11-20, 2020, Webinar; Rare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD);  European Academy of Neurology;  European Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of Dermatologist;  European Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare Disorders;  Rare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases Oncology;  Northeast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease Organisations;  International Rare Diseases Research Consortium; Rare Diseases Society Singapore;  Organization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 7: Rare Oncology Disorder

The many different types of rare oncological diseases include tumors of the body and hematological disorders of the blood. Although individually these malignancies are rare, as a group, they represent a significant majority of people with cancer.Certain characteristics of these malignancies differentiate them from more common types of cancer. Often, the cancer begins in a type of cell that only rarely becomes cancerous. This can happen in organs that are otherwise common sites of cancer growth. For example, although breast cancer is not a rare disease, angiosarcoma of the breast, which arises in the inner lining of blood vessels, is a rare cancer..            

Relevant Conferences:Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7^th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8^th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16^th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12^th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11^th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1^st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 Webinar; The European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 Webinar; Rare Drug Development Symposium June 11-20, 2020, Webinar; Rare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD);  European Academy of Neurology;  European Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of Dermatologist;  European Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare Disorders;  Rare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases Oncology;  Northeast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease Organisations;  International Rare Diseases Research Consortium; Rare Diseases Society Singapore;  Organization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 8: Rare Diseases of Lymphatic System

These diseases occur very rarely, consisting of fluid-filled channels they are non-malignant masses or spaces thought to be caused by the abnormal development of the lymphatic system. These formations are usually detectable at birth or after two years of age. Lymphatic malformations can affect any part of the body (except the brain), but they most commonly affect the head and neck. When recognized at birth that is congenital, lymphatic malformations tend to be soft, spongy, non-tender masses. The most common symptoms and lymphatic malformations severity differs depending upon the size and specific location of the malformation. Some lymphatic malformations can be massive or huge Lymphatic malformations can potentially cause functional impairment of nearby structures or organs and disfigurement of affected areas Irrespective of size.

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7^th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8^th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16^th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12^th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11^th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1^st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 Webinar; The European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 Webinar; Rare Drug Development Symposium June 11-20, 2020, Webinar; Rare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD);  European Academy of Neurology;  European Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of Dermatologist;  European Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare Disorders;  Rare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases Oncology;  Northeast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease Organisations;  International Rare Diseases Research Consortium; Rare Diseases Society Singapore;  Organization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

 Track 9: Rare Nutritional and Metabolic Diseases

Metabolism is the chemical process which our body uses to transform the food we eat into the form energy or fuel that keeps us alive and energetic too. When the metabolism processes fails a metabolic disorder causes and results in the body to have either too high or too little of the essential materials needed to stay healthy. Our body is very sensitive to mistakes or errors in metabolism. The body must have amino acids and many types of proteins to perform all its metabolic functions.  Calcium, potassium, and sodium ions are utilized by our brain to generate electrical impulses and to send signals, and also lipids and fatty acids to maintain a healthy nervous system.                                 

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7^th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8^th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16^th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12^th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11^th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1^st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 Webinar; The European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 Webinar; Rare Drug Development Symposium June 11-20, 2020, Webinar; Rare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD);  European Academy of Neurology;  European Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of Dermatologist;  European Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare Disorders;  Rare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases Oncology;  Northeast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease Organisations;  International Rare Diseases Research Consortium; Rare Diseases Society Singapore;  Organization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 10: Rare Gynaecological and Obstetrical Diseases

Gestational Diseases (GTD) may be defined as bunch of rare diseases that develop within the womb throughout an abnormal physiological condition. It happens once when abnormal cells or tumours grow inside the tissues that are square measure shaped following conception that may unremarkably surround the embryo and transform the placenta. Redness is caused by Acute venereal disease which might result in the Fitz-Hugh-Curtis syndrome (perihepatitis that causes higher right quadrant pain). Infection may become chronic, which are characterised by intermittent exacerbations and remissions

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7^th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8^th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16^th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12^th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11^th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1^st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 Webinar; The European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 Webinar; Rare Drug Development Symposium June 11-20, 2020, Webinar; Rare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD);  European Academy of Neurology;  European Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of Dermatologist;  European Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System; Orphanet; European Union Committee of Experts on Rare Diseases;

USA: Rare Diseases International;  Emirates Rare Diseases Association;  The Every Life Foundation for Rare Diseases;  The Ryan Foundation; Canadian Society for Immunology; National Organization for Rare Disorders;  Rare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases Oncology;  Northeast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: Rare Pediatric Infectious Disease Society of Thailand; The Asia-Pacific Alliance of Rare Disease Organisations;  International Rare Diseases Research Consortium; Rare Diseases Society Singapore;  Organization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 11: Treatment and Advanced Therapies for Rare Diseases

Diagnosis and the treatment of a rare disease become complex because of the circumstances that numerous health care providers may have restricted involvement with the identification of the disease condition with the diagnosis of rare diseases. Additionally, analysis before manifestation onset or diagnosis early stage in the disease can be challenging. Biopharmaceutical experts in the field have utilized new advances and the developing investigative comprehension of many rare diseases to develop and diagnose ground breaking therapies over the last 10 years. In 2015 alone, about half (47%) of novel latest drug approvals were for rare diseases. Disease specific therapies need to be developed for productive results in treatment of Rare Diseases.

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7^th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8^th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16^th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12^th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11^th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1^st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 Webinar; The European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 Webinar; Rare Drug Development Symposium June 11-20, 2020, Webinar; Rare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD);  European Academy of Neurology;  European Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of Dermatologist;  European Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare Disorders;  Rare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases Oncology;  Northeast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease Organisations;  International Rare Diseases Research Consortium; Rare Diseases Society Singapore;  Organization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 12: Orphan Drugs Potentiality

An orphan drug is referred medicinal agent which has been developed to treat a rare medical illness or situation, the condition itself being defined to as a rare disease. Rare disease, also known as an "orphan disease", is any type of disease which affects a small percentage of the population. Majority of rare diseases are genetic, and hence are present throughout the individual's entire life, even if symptoms don’t appear immediately. Many rare diseases appear early in life, and about 30 % of children with rare diseases will die before getting 5 year old. With only a solo diagnosed patient, ribose-5-phosphate isomerase deficiency is presently considered to be the rarest genetic disease. No single cut-offs number has been decided upon for which a disease is considered rare. An illness may be considered rare in one part of the world, or in a group of people, but still be common in another country or group of people. According to a research over 55 million people are estimated to suffer from a rare disease in Europe and in the US, global estimates are between 5000 to 7000 rare diseases and new rare diseases are revealed every week and for many treatments is not available.

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7^th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8^th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16^th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12^th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11^th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1^st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 Webinar; The European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 Webinar; Rare Drug Development Symposium June 11-20, 2020, Webinar; Rare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD);  European Academy of Neurology;  European Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of Dermatologist;  European Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare Disorders;  Rare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases Oncology;  Northeast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease Organisations;  International Rare Diseases Research Consortium; Rare Diseases Society Singapore;  Organization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 13: Rare Diseases in Blood stream

Breakdown in regular process of blood cell growth and development leads to the cell types production in abnormally large quantities or in abnormal form. Some rare blood disorders especially those that are gene-based are easy to identify with a simple test, while others require substantial analyst work to successfully diagnose. Due to the large number of blood conditions common and uncommon, haematologists tend to be skilled investigators because they need to be specialists in differential diagnosis. This leads to blood cancers or other blood disorders. The most common blood cancers include leukemia, lymphomas, and multiple myeloma. There are few common blood disorders also. These include various myeloproliferative neoplasms, histiocytosis, and paroxysmal nocturnal hemoglobinuria.   

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7^th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8^th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16^th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12^th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11^th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1^st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 Webinar; The European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 Webinar; Rare Drug Development Symposium June 11-20, 2020, Webinar; Rare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD);  European Academy of Neurology;  European Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of Dermatologist;  European Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare Disorders;  Rare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases Oncology;  Northeast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease Organisations;  International Rare Diseases Research Consortium; Rare Diseases Society Singapore;  Organization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 14: Rare Diseases of Endocrine System

Even though numerous endocrine system illnesses such as diabetes, thyroid, and osteoporosis are among the utmost common and well known medical conditions, some patients who have been referred to an endocrinologist will require treatment for a rare disease. Numbers of these rare diseases are dangerous and lead to myriad sequelae and secondary diseases. Gland-based hormonal imbalances resulting in developmental abnormalities and related complications are among these diseases, weight regulation issues and physical abnormalities and frequent carcinogenic and non-carcinogenic endocrine-related tumour disorders (e.g., multiple endocrine neoplasia, neuroendocrine cancer adrenocortical carcinoma, papillary thyroid carcinoma, primary thyroid lymphoma). Rare endocrine diseases can potentially impact any organ system, however.

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7^th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8^th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16^th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12^th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11^th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1^st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 Webinar; The European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 Webinar; Rare Drug Development Symposium June 11-20, 2020, Webinar; Rare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD);  European Academy of Neurology;  European Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of Dermatologist;  European Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare Disorders;  Rare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases Oncology;  Northeast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease Organisations;  International Rare Diseases Research Consortium; Rare Diseases Society Singapore;  Organization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 15: Rare Musculoskeletal Diseases

A wide range of rare conditions involve the musculoskeletal system. Some, like Duchenne muscular dystrophy, arise from genetic problems in the muscles themselves, while others involve the nerves (e.g., Charcot-Marie-Tooth disease), motor neurons (e.g., amyotrophic lateral sclerosis [ALS]), or the bones (e.g., osteogenesis imperfecta). Problems in other part of the body—such as mitochondrial disease or a metabolic disease like carnitine deficiency can also lead to major problems with these systems. Many individuals are familiar with some of these conditions. Nonetheless, treatment options remain limited although extensive research may soon change that.

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7^th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8^th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16^th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12^th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11^th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1^st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 Webinar; The European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 Webinar; Rare Drug Development Symposium June 11-20, 2020, Webinar; Rare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD);  European Academy of Neurology;  European Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of Dermatologist;  European Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare Disorders;  Rare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases Oncology;  Northeast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease Organisations;  International Rare Diseases Research Consortium; Rare Diseases Society Singapore;  Organization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 16: Rare Hereditary Diseases

Researchers have made dramatic inroads into the study of polygenic and other complex human diseases, due in large part to knowledge of the human genome sequence, the generation of widespread markers of genetic variation, and the development of new technologies that allow investigators to associate disease phenotypes with genetic loci. Although polygenic diseases are more common than single-gene disorders, studies of monogenic diseases provide an invaluable opportunity to learn about underlying molecular mechanisms, thereby contributing a great deal to our understanding of all forms of genetic disease.

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7^th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8^th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16^th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12^th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11^th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1^st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 Webinar; The European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 Webinar; Rare Drug Development Symposium June 11-20, 2020, Webinar; Rare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD);  European Academy of Neurology;  European Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of Dermatologist;  European Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare Disorders;  Rare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases Oncology;  Northeast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease Organisations;  International Rare Diseases Research Consortium; Rare Diseases Society Singapore;  Organization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 17: Orphan Medicinal Products

Orphan medicinal products are intended for the analysis, prevention or treatment of dangerous or very serious conditions that affect no more than 5 in 10,000 people in the European Union. Patients suffering from rare diseases deserve the same quality of treatment as other patients within the European Union. Given the small numbers of patients affected by rare diseases, the pharmaceutical industry has been unwilling in the past to invest in the research and development of medicinal products to treat them. The EU introduced new legislation in 2000 with the aim of providing incentives for the development of medicines for rare diseases (so-called orphan medicinal products).

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7^th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8^th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16^th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12^th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11^th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1^st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 Webinar; The European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 Webinar; Rare Drug Development Symposium June 11-20, 2020, Webinar; Rare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD);  European Academy of Neurology;  European Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of Dermatologist;  European Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare Disorders;  Rare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases Oncology;  Northeast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease Organisations;  International Rare Diseases Research Consortium; Rare Diseases Society Singapore;  Organization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 18: Economic aspects of Rare Diseases and Orphan Drugs

Economic difficulties related to the prevention, analysis and treatment of Rare Diseases and production of Orphan Drugs are presented compensating particular attention to the costs of financing treatment, including the issue of its repayment, which is an important and difficult to solve economic problem of the health care system. Cumulative pressures on health care financial plan have led to a rising attention in the use of economic evaluation in reimbursement decisions for Orphan Drugs and other health technologies

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7^th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8^th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16^th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12^th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11^th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1^st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 Webinar; The European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 Webinar; Rare Drug Development Symposium June 11-20, 2020, Webinar; Rare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD);  European Academy of Neurology;  European Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of Dermatologist;  European Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare Disorders;  Rare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases Oncology;  Northeast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease Organisations;  International Rare Diseases Research Consortium; Rare Diseases Society Singapore;  Organization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeons

Track 19: Orphan Drugs strategies and developmental trends

As per the recent researches, the orphan drug market is now opening to display trends seen in traditional pharma markets. The numbers of orphan drug approvals have increased in recent years. Both novel agents and new indications serve as the primary drivers of this recent orphan drug growth. The new business model of orphan drugs could offer a cohesive healthcare resolution that enables pharma companies to develop newer areas of therapeutics, analysis, treatment, monitoring, and patient support. Additionally, the development of orphan drugs is faced with some challenges that are unique to rare diseases. In spite of the challenges, creative Competitive Intelligence (CI) strategies can provide an attentive and improved method for the successful development of orphan drugs.

Relevant Conferences: Rare Diseases Webinars | Rare Diseases and Orphan Drugs webcast 2020 | Infectious Diseases online Conferences | Infection Webinars | Epidemiology Live Events | Public Health Conferences | Health Care Conferences | Orphan Drugs Conferences | Inherited Rare Diseases Conferences | Immune Deficiency Conferences | Pathogenesis Conferences | Rare Diseases webinars 2020 Asia |  Scientific Webinars on Rare Diseases 2020 Europe | Rare Diseases  Virtual Conferences 2020 USA | Rare Diseases online Conferences 2020 Canada

7^th International Congress on Infectious Diseases February 24-25, 2020  Webinar; 8^th World Congress on Control and Prevention of HIV/AIDS, STDs & STIs June 24-25, 2020  Webinar; 16^th World Congress on Infection Prevention and Control September 16-17, 2020  Webinar; 12^th Euro-Global Conference on Infectious Diseases October 05-06, 2020 Webinar; 11^th International Conference on Emerging Infectious Diseases November 23-24, 2020 Webinar; 1^st Global Congress on Epidermolysis Bullosa  January 19-20, 2020 Webinar; The European IPF Patient Summit April 24-26, 2020 Webinar;  The Global Orphan Drug Conference and Expo April 29- May 01, 2020 Webinar; Rare Drug Development Symposium June 11-20, 2020, Webinar; Rare Patient Advocacy Summit September 21-23, 2020 Webinar

Relevant Societies:

Europe: European Union Committee of Experts on Rare Diseases;  European Organisation for Rare Diseases;  Genetic and Rare Diseases Information Centre (GARD);  European Academy of Neurology;  European Academy of Rare Diseases(EARD); European Society of Rare Disease Oncology(ERDO); European Society of Rare Disease Pathologists; European Society of Dermatologist;  European Confederation of Primary  Health Care; European Academy of Rare Pediatric Diseases; European Society of Rare Mental and Behavioural Disorders; European Society for Immunological  Rare  Diseases; European Society of Rare  Infectious Diseases; European Society of Rare  Neonatal and Intensive Care; Associations for European Rare Diseases and Congenital Cardiology; European Rare Diseases Association; European Society for Rare Diseases of Lymphatic System.

USA: National Organization for Rare Disorders;  Rare Disease Foundation; Rare Diseases International; Emirates Rare Diseases Association; The Every Life Foundation for Rare Diseases; American Rare Diseases and Orphan Drug  Association; American Rare Diseases Society; Children's Hospital Association; North Carolina Rare Diseases Society; Georgia Rare Diseases Practice Managers Association; Academic Rare Diseases and Orphan Drug Association; American Society of Rare Diseases Oncology;  Northeast Rare Diseases  Cardiology Nurses Association; Rare Disease of Neurology Association; American Association of Behavioural Disorders; American Association for immunology; American Rare Diseases and Orphan Drug Associations; Burlington Rare Diseases Association; Association of  Rare Child Neurology Nurses.

Asia Pacific: The Asia-Pacific Alliance of Rare Disease Organisations;  International Rare Diseases Research Consortium; Rare Diseases Society Singapore;  Organization for Rare diseases India; Rare Voices Australia; Rare Diseases Society Bangladesh; The Malaysian Rare Diseases Association; Asia pacific Rare Diseases Association; Taiwanese Association of Rare Diseases; Korean Association of Rare Diseases; Vietnam Association of Rare Diseases; Indonesian Society of Rare Diseases Surgeon.

Rare Disease Treatment Market size is experience significant growth from 2019 to 2025. Increasing prevalence of rare diseases across the world will stimulate rare disease treatment market growth in the coming years. Rare diseases or orphan diseases are conditions that affect a small percentage of population at any given time. According to the U.S. Food & Drug Administration (FDA), an orphan disease is defined as a disease or condition affecting less than 200,000 people in the country. Orphan Drugs Act under the U.S. legislation allows manufacturer to request FDA to grant an orphan drug status to drugs intended to treat a rare disease or condition.

The Objective of the "Global Rare Disease Drugs Market" report is to depict the trends and upcoming for the Rare Disease Drugs industry over the forecast years. Rare Disease Drugs Market report data has been gathered from industry specialist/experts. Although the market size of the market is studied and predicted from 2019 to 2028 mulling over 2016 as the base year of the market study. Attentiveness for the market has increased in recent decades due to development and improvement in the innovation

Additionally, rising investment in rare diseases treatment categories and introduction of new drugs will boost the market growth in the coming years. For instance, more than 560 drugs are in development for the treatment of rare disease. Therapies in development include treatment for amyotrophic lateral sclerosis, multiple myeloma, cystic fibrosis and enzyme deficiency disorders. Rising government initiatives for spreading awareness regarding rare diseases along with presence of suitable healthcare infrastructure in developed and developing economies will drive the industry growth.

Market Research Growth on Rare Diseases and Orphan Drugs

Nearly there are 7,000 different types of Rare Diseases and disorders it has estimated that 30 million people in the United States, 30 million in Europe and 350 million people over the globe suffer from Rare Diseases. Four by fifth of Rare Diseases are genetic in origin, among them affected individuals 50% of them will be children. The Rare Diseases are distributed in such a way that four fifth of the cases accounted by some 350 Rare Diseases. About only 5% of rare diseases are having approved drug treatment with only 326 new drugs being approved from the FDA and brought in to the market.

In 2018, Orphan Drug sales were of the order of 93 billion. Orphan Drugs represented 35% of the industry’s new drug approvals. The genetic diseases are subdivided by therapeutic area, which was leading the global market in the past will show similar traction in the coming next eight years. This segment is anticipated to be valued at US$ 56,241 by the end of 2025. According to Statistics of MRC, the Global Orphan Drug market is estimated at $145.89 million in 2018 and is expected to reach $265.63 million by 2022 growing at a CAGR of 10.5% from 2018 to 2022.

Major Associations Associated with Rare Diseases Research:

• Alzheimer's disease Organizations
• Ann & Robert H. Lurie Children’s Hospital
• Birmingham children’s Hospital
• Boston Children’s Hospital
• Canadian Organization for Rare Diseases
• Chicago Rare Disease Foundation
• Children’s hospital of Pittsburgh
• Comer Children’s Hospital – University of Chicago
• Cystic Fibrosis Foundation
• European Union Committee of Experts on Rare Diseases
• EURORDIS Rare Diseases Europe
• Every Life Foundation for Rare Diseases
• Global Genes Allies in Rare Diseases
• Guardian Hands Foundation
• Hospitals Associated with Rare Diseases Research
• IRDR Intractable & Rare Diseases Research
• Japan Patient Association
• Multiple Myeloma Research Foundation
• National Alliances for Rare Diseases
• National Institute of Health (NIH)
• National Organization for Rare Diseases
• NDC Medicine
• Organization for Rare Diseases India (ORDI)
• Orphan Europe
• Philippine Society for Orphan Disorders
• Rare Disease UK
• Rare Diseases or Syndromes and Clinical Societies
• Rare Diseases Foundation, Iran
• Rare Diseases Patient Association Funding
• Rare Diseases South Africa
• Rare Diseases Translational Research Collaboration
• Rare Disorders Society Singapore
• RARE Foundation Alliance
• Royal Society of Medicine
• Short Bowel Syndrome Foundation
• Students4RareDiseases
• The Asia-Pacific Alliance of Rare Disease Organisations
• The Boler-Parseghian Centre for Rare & Neglected Diseases
• The Children’s Hospital of Philadelphia
• The Every Life Foundation for Rare Diseases
• The Genetic and Rare Disorders Organization
• The Greek Alliance for Rare Diseases
• The Manton Centre for Orphan Disease Research
• U.S. Food and Drug Administration
• UCLA Health
• US hospital for Rare Disease Research

Major Universities Associated with Rare Diseases Research

• Anahuac University North Campus, Mexico
• Australian National University, Australia
• Benha University, Egypt
• Birmingham City University, UK
• Center for Clinical Pharmacology, Belgium
• Center for Rare Neurological Diseases, USA
• Charles Darwin University Casoria Australia
• Columbia University Medical Center, United States
• Columbia University, USA
• Curtin University Bentley, Australia
• Dar Al Uloom University, Saudi Arabia
• Duke University, USA
• Emory University, USA
• GMEC, The Global Medical Excellence Cluster
• Guangzhou Medical University, China
• Harvard University, United States
• Harvard University, USA
• Imperial College London, United Kingdom
• Infection Control University
• Iqbal Chest Centre, Bangladesh
• John Hopkins University, USA
• Johns Hopkins University, United States
• Karolinska University, Sweden
• Kindai University, Japan
• King Saud Bin Abdulaziz University, Saudi Arabia
• King's College London, UK
• Kumamoto University, Japan
• Linnaeus University, Sweden
• Macquarie University, Australia
• Mayo Clinic College of Medicine, USA
• McGill university   Montréal, Canada
• McMaster University, Canada
• Medi7 Bentleigh, Australia
• Murdoch University   Murdoch, Australia
• National Institutes of Health, USA
• Newcastle University, Australia
• North-western University, Qatar
• Osaka University, Japan
• Oxford University, UK
• Philip Morris International R&D, Switzerland
• Pompeu Fabra University, Spain
• Queen Mary University, UK
• Radboud University Medical Center, Netherlands
• Rare Genomics Institute, USA
• Research Institute of Hospital del Mar, Spain
• Rizzoli Orthopedic Institute, Italy
• Samsung Medical Center, South Korea
• St George’s University of London, UK
• St. George Hospital, Australia
• Stanford University, USA
• Tasmanian Health Service, Australia
• The Chest & Heart Association of Bangladesh, Bangladesh
• The Fourth Hospital of Harbin Medical University, China
• The Jikei University School of Medicine, Japan
• The Third Affiliated Hospital of Guangzhou Medical University, China
• The University of Newcastle, Australia
• Tufts university, United States
• United Hospital, Bangladesh
• University College London, UK
• University of British Columbia, Canada
• University of Buffalo, United States
• University of California Los Angeles, United States
• University of California, USA
• University of Cambridge, USA
• University of Canberra Bruce, Australia
• University of Celiac Disease Center, USA
• University of Chicago Medicine, USA
• University of Colorado, USA
• University of Groningen, Netherlands
• University of Lincoln, UK
• University of London Imperial College of Science Technology and Medicine, UK
• University of Maastricht, Netherlands
• University of Maryland Medical Center, Australia
• University of Maryland Medical Center, United States
• University of Melbourne, Australia
• University of Minnesota, United States
• University of Newcastle, Australia
• University of Pennsylvania, USA
• University of Pittsburgh Study
• University of Pittsburgh, USA
• University of Queensland, Australia
• University of Tasmania, Australia
• University of Toronto, Canada
• University of Valencia, Spain
• University of Washington, USA
• University of Zurich, Switzerland
• University-of-the-sunshine-coast, Australia
• Weill Cornell Medical College, Qatar
• Wits University, South Africa
• Yale University School of Medicine, USA
• Yonsei University, South Korea

Major Companies Associated with Rare Diseases and Orphan Drugs

• 700thespians Limited, UK
• Abbott Laboratories, UK
• Actavis, USA
• Aegerion Pharmaceuticals, Japan
• Alexion Pharmaceuticals Inc., Switzerland
• Almirall, Spain
• Amgen, USA
• Amicus Therapeutics, USA
• Amphastar Pharmaceuticals, Inc.
• Araim Pharmaceuticals
• Astellas Pharma US
• AstraZeneca, Switzerland
• AstraZeneca, UK
• Baxter International Deerfield
• Bayer HealthCare, Germany
• Bayer, Germany
• Beacon Pharmaceuticals, Bangladesh
• Biotie Therapies Corp, Finland
• Bioxyne Limited, Australia
• Boehringer Ingelheim, Germany
• Celgene, Switzerland
• Centrapharm Ltd, UK
• Chiesi Pharmaceutical, Italy
• Clalit Health Service, Israel
• Cohero Health, USA
• Daiichi Sankyo Europe, Germany
• Daiichi Sankyo, Japan
• Dohmen Life Science
• Elma Research, UK
• European Medicines Agency
• Focus Scientific Research Center (FSRC), phamax, India
• Forest Laboratories, USA
• Gecko Health, USA
• Generics (UK) Ltd, UK
• Genus Oncology Vernon Hills, USA
• Genzyme, USA
• Gilead sciences, USA
• GlaxoSmithKline, UK
• Global Data, UK
• Gsk, London
• Hormosan Pharma, Germany
• Hormosan Pharma, Germany
• Ikris Pharma Network Pvt Ltd, India
• Ikris Pharma Network Pvt Ltd, India
• Kissei Pharmaceutical Co., Ltd, Japan
• Kyowa Hakko Kirin Co. Ltd, Japan
• Lallemand Pharma, Switzerland
• Life Arc, UK
• Marathon Pharmaceuticals
• Merck & Co, USA
• Millennium Pharmaceuticals
• Napp Pharmaceuticals Ltd, UK
• Novartis, Switzerland
• NPS Pharmaceuticals
• Octapharma, USA
• Onyx Pharmaceuticals, USA
• Otsuka Holdings Co., Ltd, Japan
• Panmira Pharmaceuticals, LLC, USA
• Pearl Therapeutics, Inc.
• Pfizer, USA
• PharmaMar, USA
• Prosensa, Netherlands
• PT Boehringer Ingelheim, Indonesia
• Queensland Respiratory Laboratory Pty. Ltd, Australia
• Ranbaxy Laboratories Limited
• Raptor Therapeutics
• Roche, Switzerland
• Samsung Medical Center, South Korea
• Sanofi, France
• Sarepta Therapeutics, USA
• Sigma-Tau Pharmaceuticals, Italy
• Sunovion Pharmaceuticals, USA
• Swedish Orphan Biovitrum AB, Sweden
• Takeda, Japan
• TriStem Corp Ltd, UK
• Vertex Pharmaceuticals, USA
• ViroPharma
• ViroPharma, USA
• Visionary Pharmaceuticals, Inc., USA
• Yungjin Pharm Ind. Co., Ltd, South Korea

Summary:

Rare Diseases are that affects a small percentage of the population all over the world. An Orphan Disease is Rare Diseases with a lack of a market large enough to gain support and sources for discovering treatments for it, with advances to research in orphan diseases advantageous conditions to creating and selling such treatments. Rare diseases are genetic and are present throughout the entire life of individual suffering, even if symptoms do not immediately appear. Many Rare Diseases seems to appear early in life, and about 30% of children affecting with rare pediatric diseases will die before getting 5 year old. Rare Diseases are generally genetic and so they chronic. It is estimates that at least 80% of them have identified genetic origins. Other Rare Diseases are the result of infections and allergies or it may be due to degenerative and proliferative causes and discovering the well-advanced treatments in Rare Diseases and Orphan Drugs.